I have known for awhile that the stories I listen to day in and day out about women who have been injured by mesh, have haunted me. Terrible stories of lives cut short of women of all ages. I have been contacted by women who have huge complications from mesh, from ages 21 years to 90 years. I have spent over two years learning and gathering information to help myself and other women to get through these complications. But the stories never stop and I am losing hope.
When I faced that reality this morning I knew I had to stop. I tried to change things by cutting it down. I tried to speak less hours on the phone to these women, but none of it has worked. It has taken over my life and over my mind. I hate the word MESH! I hate hearing it, seeing it and reading it. And yet mesh is still in my body hurting me every day.
I knew this morning I had to make a full stop change so that over the next few months I can change the four letter word ‘mesh’ in my head into another four letter word. Hope! This can’t be done while I listen to more terrible and terrifying stories of mesh injuries. The change has to come from me.
I tell women all the time that there comes a time in your life when you have to put yourself first. Not your partner, your children and not your grandchildren. You! As I have spoken these words over the phone, the words come right back at me. I have to do the same. This means taking a break from all that is hurting me in both my mind and my body. I have to change my thinking to prepare for my own upcoming removal surgery. I can’t do this if I do not have hope.
There is still others out there who are trying to change things and are helping women through this terrible tragedy. I am going to put this information here so that you can contact them yourself. But it does not matter how much information you receive, phone calls by others to help you, you are the only one who can help yourself. You have to find a way to travel to a surgeon who can remove the mesh successfully. If this means you cutting off the help line to others while you find your own version of hope, then do it. People will only love you, if you love yourself first. If they don’t then this means they never loved you anyway. Sad I know. But I have faced this before and got through it. You can too.
The following is the name and information of a doctor that women who are in this predicament feel is the best surgeon in the world. There are others I am sure, but this is the surgeon I have chosen to give me hope. There is also a link to a couple who are working on setting up a nonprofit organization to help women in the future. All this takes time, so please do not expect miracles.
First, I have written many blogs to help you. The information was gathered from other women who are going through what you are going through and from my own efforts to try to stay well enough until I could get help. Take from them what you wish and do what you like. This is your life we are talking about, not mine.
If you do not know what to ask of any doctor/surgeon before you have mesh removal, these are questions that could help you. http://teapapers.com/bladdersling/2012/02/questions-to-ask-before-mesh-removal/ Print these out and take them to ask your doctor what you need to know about your complications and his skills.
This blog is about a test that can detect where your mesh is. Dr Raz of UCLA designed how to read this test to help find what is happening to women before surgery. He will answer any questions from your doctor and help them use it. http://teapapers.com/bladdersling/2012/02/mesh-complication-education/
If you are having serious yeast infections because you are taking antibiotics due to constant infections, I wrote this blog http://teapapers.com/bladdersling/2012/05/bladder-slings-uti-infections/
If you decide to go to a doctor who your insurance will not pay for, learn more what to do here. http://teapapers.com/bladdersling/2012/03/mesh-your-insurance/
Please tell women to read this BEFORE they have a hysterectomy. I wrote this blog for the Hers Foundation because they did not know what was happening to women. http://teapapers.com/bladdersling/2012/04/221/
A couple who knows what mesh can do to women have started a new organization http://www.tvtno.org You can email them here. email@example.com
By writing this blog over more than eighteen months, other women have helped me with what happened to them and how they coped. While they shared, I learned. I will be forever grateful. The one thing I learned is that there is a really good surgeon in this country and I will be travelling from Texas to California on June 4th and have my first consulting appointment with him on June 5th. This is his information. Please understand that this man is swamped with mesh removal surgeries. When you call the new patient number, be nice and be patient.
Dr. Shlomo Raz ………………………new patient hotline 310-794-7700. UCLA Medical Center Urology. 200 Ucla Medical Plaza Suite 140 Los Angeles, CA, 90095
So now I will switch my mind for awhile to find my own hope. I hope you will find yours. I plan to share that hope with you some day when my mind is ready.